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6 active discussions
Managing Pain Crisis at Work - Need Advice
I've been struggling with managing pain crises while maintaining my job. My employer is supportive, but I'm looking for practical strategies from others who have faced similar challenges...
Insurance Coverage for New SCD Treatments
Has anyone had success getting insurance coverage for the newer SCD treatments? I'm specifically interested in experiences with gene therapy approval processes...
Supporting My Teen Daughter with SCD
My 16-year-old daughter was recently diagnosed with SCD. Looking for advice from other parents on how to help her navigate high school while managing her condition...
Nutrition Tips That Actually Help with Energy
We've compiled nutrition strategies shared by our community members that have helped boost energy levels. Here's what's working for people with SCD...
Preparing for Surgery with SCD
I need to have surgery next month and I'm nervous about complications. What should I discuss with my surgical team? Any preparation tips?
Mental Health Resources and Coping Strategies
Living with a chronic condition like SCD can impact mental health. Let's discuss resources, coping strategies, and how to build resilience...